Our daughter Mackenzie was diagnosed with hypoplastic left heart syndrome (HLHS) at 16 weeks gestation. She was born in October 2020 and spent the first 10 weeks of her life in the hospital. She had a PDA stent procedure in the cath lab at 6 weeks old. She is currently at home doing well, growing, and preparing for open heart surgery.
She also recently had surgery to implant a pacemaker as she had developed complete heart block.
We are so grateful for the amazing care she has received at OSF Children’s Hospital of Illinois and the Congenital Heart Center. We are walking to celebrate Mackenzie and to raise awareness for CHDs.